You can check out the current challenge by visiting the Color Me Scrappy Blog here.
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Unfortunately Ashlyn has had a huge setback. She dropped down to 74 pounds, losing 7 pounds alone in about 5 weeks. She has not been able to walk unassisted for over 3 weeks now and her body is severely malnourished. She is literally skin and bones. She had another ng tube placed on Wednesday morning and will undergo a surgery to place a permanent feeding tube directly into her stomach (called a g-tube) so she will not have to continue to have the ng tube. We have no date set for the surgery as of yet. It is so heartbreaking. She is so angry with her body and feels like she failed (as do I). We have worked so hard to keep her weight stable and she lost about 18 months of progress in just a few weeks. For whatever reason her body just doesn't like to absorb nutrients. We may never know why. She had full scopes again a few weeks ago and thankfully her Crohn's is under control. That is a huge blessing, because that would have just made this situation so much worse. If you could keep my sweet girl in your prayers, I would appreciate it. She would really like to be able to have enough energy to enjoy Christmas.
So sorry to hear about Ashlyn ... I have had her in my prayers and will continue too ... I hope she is able to enjoy Christmas!! I loveeeeeeeeeeeeee your bottles!!! They are sooooooooooooooooo cute!!!!!!!!
ReplyDeleteRaechelle! So sorry to hear about your little girl. I will keep you and her in my prayers. I hope Christmas is enjoyable for her! Leslie xo
ReplyDeleteI love your bottle set - what a creative idea! So sad to hear about your little girl, though. Lifting her up in prayer.
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